Day 8 Saturday and Day 9 Sunday
We stayed in mostly and Mom went out for food. I feel like we are hibernating! I am doing my best to get Jackson better and so he can have the MRI.
Day 10 Monday
Hilary did not hear back from G.A. at all. I began loosing hope. We decided to wait one more day to hear from them before we make our final bloodwork and EPI 743 delivery plans to come home.
Day 11 Tuesday
I finally heard from Hilary, Dr. Cohen's nurse today. Jackson will have an MRI on Friday with G.A. . I don't know the time yet. I am nervous about him having anesthsia. I am excited about seeing his brain after 5 yrs of Leigh's. I have lots of emotions now. Please pray that the G.A. goes great with Jackson and he gets over his cold. Jackson will get the EPI-743 on the folowing Monday and then we can come home!!!!,