This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe!
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Monday, December 6, 2010
a bad afternoon
We had a good night and morning today. Things began to fall apart however, at 1:00. His Temp soared to 103.8 and he was breathing really fast 50 resp per min. The nuse called the dr.He put Jackson on High Flow oxygen and ordered tylenol/advil rotation. He also called the PICU to be on the look out for us. We freaked out! I told the dr don't be shy with Jack's treatment plan-be aggressive!So he did and Jackson is feeling better. His temp is down to 100.8 and resp are down too. Jackson is sleeping and that is a good thing. Sleep allows the body to make/repenish energy and make celluar repairs. Keep praying.
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