This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe!
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Sunday, May 29, 2011
Sunday May 29 9:53
Jackson had a fair night. He slept from 9pm until 3am. He didn't wake up when they took his temp at around midnight. It was a normal temp. At 3am his diaper had leaked. The bed was soaked and he was cold. He has had round 1/3 chest vest sessions already. He will get albuterol at 12:00. he is trying to sleep some but it is hard with a stuffy nose. He doesn't seem quite as tired as last night but is worn out from the vest. His temp was checked in the 8 o'clock hour and it was 100.9. He has had some Tylenol. Just waiting on Jackson's body to fight these germs off.
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